NICU bummer

Yesterday we got two interesting pieces of mail. The first was the three page report of the doctor we had seen in Pittsburgh, and it was nice to reread her findings and comments. It was good to read what his doctors and therapists will be reading, and she referred to Ev several times in the letter as a beautiful and pleasant little boy, which was just so sweet to hear.

The other bit of mail was from the Hamot NICU. I was expecting our eval packet for Ev's next follow-up in December--instead we got a letter that told us that the NICU follow-up clinic was not going to see any more graduates after November. I was so upset at this, I almost cried! I know that sounds so dumb, but I really liked going back there every 6 months or so to show off Evan and see his nurses and therapists again. Not only that, but they are the ones in May that said Evan should be reevaluated for speech therapy, after he had just had a fine eval in March. And they were right, and here we are months later with therapy and all that going on. If they hadn't said something, it may have been several more months before Evan was seen again. I am a little sad that we won't be going back there anymore, and I'm hoping that no kids miss out on treatment they might need because of it.