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At this moment, we three in our little family are supposed to be arriving at our lovely hotel with a pool in Pittsburgh, ready for a night of relaxation before Evan's big evaluation tomorrow.
Not happening.
We had ice and freezing rain all night and into this morning, as did Pittsburgh, and it has now changed over to a lovely heavy snow. We debated and discussed, and in the end decided to be cautious and stay home. We cancelled our hotel reservations and rescheduled Evan's eval for the end of March.
I'm pretty upset about the whole thing. I'm just so worried that we're wasting time. We have less than a year left with Early Intervention, and I feel like things aren't progressing fast enough. I know that Evan is doing well and making steps in the right direction, and I know that he will start doing things when he is ready, just like he always has. But still I feel like we should be doing more and trying harder.
I guess the word I'm looking for is powerless. I feel powerless to help him get through this, just like I felt when he was a tiny baby being poked and prodded in the NICU. It's a tough way to feel, because as a mother I want to shield him from all the bad stuff, I want to make everything okay, I want to make sure he has a bright future. I know we're doing our best but sometimes I fear that our best might not be good enough.
Okay, enough of that. Tomorrow I promise to return with a more positive outlook.
Posted by jenny at January 27, 2004 04:57 PMYour right- you have 1 night only to be sad. Powerless is the perfect word to describe your situation.Sometimes life sucks-but just for tonight-be positive tomorrow.My thoughts are with you.
Posted by: mikaele at January 27, 2004 09:34 PMI think the most positive step you took today, was deciding that the safety of your family is more important for now! You want to ensure Evan has a future, right?
Posted by: Linda at January 27, 2004 09:41 PMAlthough I'm not sure I can fully appreciate your situation, it's tough reading of your frustration. I think you and Mike made a wise decision though.
Posted by: greg at January 28, 2004 10:31 AMhugs... It's always tough not to have control of a situation, but it sounds like you're doing such a good job!
Posted by: trish at January 28, 2004 01:50 PM